Physio for children with Rett syndrome

Expert, compassionate physiotherapy for children living with Rett syndrome.

Specialist Physiotherapy for Rett Syndrome

Helping your child to move, play, and reach their potential

Rett syndrome is a rare and complex neurological condition that can affect every aspect of a child’s development. Although early milestones may appear typical, children usually experience a gradual loss of skills from around 6 to 18 months of age. At PaedsPhysio, we understand how overwhelming this can feel for families, and we are here with skilled support. Our experienced children’s physiotherapists work closely with families to help each child maintain their movement, comfort, and engagement with the world around them.

WHAT IS RETT SYNDROME?

What is Rett Syndrome?

Understanding the impact of Rett syndrome

Rett syndrome is a genetic disorder which most commonly affects girls. After a period of apparently normal development, children start to lose skills they had previously mastered, including speech, hand use, and motor abilities. Repetitive hand movements, difficulties with walking, breathing irregularities, seizures, and scoliosis are common challenges faced by families.

At PaedsPhysio, we know that no two experiences with Rett syndrome are the same. Our team takes the time to understand your child’s unique strengths and needs, working alongside you to create a supportive and practical physiotherapy plan. We focus on maintaining mobility, reducing secondary complications, and enabling every child to live life as fully as possible, all while providing reassurance and clear advice to families.

Children with Rett syndrome may experience:

Loss of hand function, often with repetitive movements such as wringing or clapping.
Loss of verbal communication, relying more on eye gaze and gestures.
Difficulties with walking, standing, and independent movement.
Increased risk of developing scoliosis (curvature of the spine).
Breathing irregularities, such as breath-holding or hyperventilation.

How Physio Helps Children with Rett Syndrome

At PaedsPhysio, we believe every child deserves to enjoy the highest possible quality of life

Our physiotherapy service for children with Rett syndrome is designed to maximise physical abilities, protect posture, and support participation in daily activities. We offer specialist support that grows and adapts with your child’s needs, with a strong focus on family involvement and achievable goals.

Physiotherapy may include: expand to list like ‘Children’s Physiotherapy following Brain Injury’ section in Acquired Brain Injury Physiotherapy – Paeds Physio

Physiotherapy for children with Rett’s:

Maintaining or improving mobility with walkers, standing frames, and supported movement programmes.
Preventing contractures and joint stiffness through stretches, exercises, and specialist positioning.
Supporting posture and spinal health to manage or reduce the progression of scoliosis.
Strengthening muscles and encouraging activity through play-based therapy and hydrotherapy.
Enhancing balance, stability, and motor control.
Promoting respiratory health with breathing exercises.
Supporting access to activities such as adapted sports, hydrotherapy, and therapeutic riding.
Providing practical advice, training, and reassurance to families and caregivers.

WE’RE HERE WHEN YOU NEED US

We’re Here When You Need Us

Expert support for children with complex, changing needs

Whether you are seeking early support or help to manage more complex needs, our family-centred PaedsPhysio team is here to listen, guide and provide expert physiotherapy. Get in touch today to find out how we can support your family.